[kj] OT Autism

Brendan bq at soundgardener.co.nz
Sat Aug 25 00:35:59 EDT 2007

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Twitcher really cracked me up Wady =)

> <html><div style='background-color:'>My Mrs to be is in her 40's and

> doing a phd, but she stims and flaps, and wears earplugs in the

> cinema.  I stim too.  It never ends. Isnt it significant

> how many Gatherers have responded to my little disclosure? 

> Cool.  I think KJ loving parents will make good Aspie parents

> too.  A certain anarchic open mindedness. 

> <DIV>

> <H6 align=center> Sans-serif">Keep Smiling...</H6></DIV>

> <BLOCKQUOTE style="PADDING-LEFT: 5px; MARGIN-LEFT: 5px; BORDER-LEFT:

> #a0c6e5 2px solid; MARGIN-RIGHT: 0px"> FONT-FAMILY: tahoma,sans-serif">

> <HR color=#a0c6e5 SIZE=1>

> From: "T.B." <Partyslammer at socal.rr.com> Reply-To:

> "T.B." <Partyslammer at socal.rr.com>,"A list about all things

> Killing Joke (the band!)"<gathering at misera.net> To:

> <fbc at 21ca.com>, "A list about all things Killing Joke (the

> band!)"<gathering at misera.net> Subject: Re: [kj] OT

> Autism Date: Thu, 23 Aug 2007 09:12:39 -0700 >"Frank

> Coleman" wrote: > > >>It's important to remember that

> Autism is a spectrum, which ranges >>from being

> "high-functioning" -- e.g., barely discernible from

>  >>non-Autistic people -- to having to be institutionalized for

> life. >> >>My 17-year-old stepdaughter has Asperger's

> Syndrome and goes to a >>mainstream school in NYC, oriented

> towards performing arts. My >>wife teaches drama to Autistic

> kids for a living

> and has worked >>miracles with her and

> others. >> >>Here's a terrific article on what

> Asperger's is like, from a recent >>article in The New

> Yorker. >> >>http://www.newyorker.com/reporting/2007/08/20/070820fa_fact_page?printable=true > >I

> just caught this thread amidst my tons of mail. My 10 year old >son

> is autistic. > >My wife and I are fairly well involved in our

> local community of >autistic families and so we've seen pretty much

> the entire range of >children and young adults who suffer from it

> from kids that are in >their teens and a very low functioning with

> a lot of social issues >who basically sit at home with violent

> tendencies who'll be forced >to live in assisted medical care

> housing for the rest of their lives >when their parents die to

> children who

> you'd never know they had >autism but have perhaps minor problems

> integrating around other kids >and are exceptional with certain

> fields like math and science. > >Really, no two people

> suffering from autism have exactly the same >issues which is also

> why it's so hard to treat. > >Our son falls kinda in the

> middle of the spectrum. He started out >when he was born a

> perfectly healthy, happy baby in '97 and by about >18 months, he

> was just starting to talk like any typical baby his >age. At that

> point, he had his MMR vaccines and got very sick for >two days,

> something our doctor said was "normal" in many cases. >Within a few

> weeks, we noticed he'd stopped talking altogether and >was crying a

> *lot* and was starting to walk on his tippy-toes like a >bird. At

> two years, he still was not talking and

> exhibiting more >autistic behavior like flapping his arms when he

> was excited and we >were becoming very concerned. We had to go

> through a lot of >bullshit to get a referral to see a neurologist

> who knew right away >our son was autistic. Once we had a diagnosis,

> it opened up a lot >of doors to get in-home therapy which is by far

> the most important >thing for a young autistic kid - parents need

> to get on the ball as >soon as possible. > >We also

> worked at his disease from a medical standpoint, having a >lot of

> tests done through several doctors here in the US who were >and are

> known as cutting edge in treating the problem. Once we >established

> possible causes (high mercury content in his bloodwork, >so-called

> "leaky gut" issues) with various drugs and a strictly >controlled

> diet we got at least

> his physical issues under control >which theoretically aided his

> brain and body to develop as best as >it could through his early

> years. Through his first few years in >school, we fought hard with

> the local school district to get the >services he needed and should

> have had access to according to state >and federal laws. We wound

> up suing and winning against our school >district which although

> cost us well over 125 thousand dollars, our >son received and has a

> great school program with an appropriate >classroom and classmates

> and a wonderful full time aid. > >He still has a very long

> ways to go but we're getting there. On the >surface, he seems like

> any other kid his age. But he still has >significant sensory

> issues, he has to wear earplugs just to go in a >movie theater and

> is deathly afraid of

> butterflies(!). That's the >toughest thing about autism from an

> outsider's point of view, is >there's very little logic or patterns

> to and autistic person's >problems and

> behaviours. > >He can't be "cured" but our goal is for him to

> be able to work and >make his own life in society independently of

> anyone else long after >we're

> gone. > >T.B. > > >_______________________________________________ >Gathering

> mailing

> list >Gathering at misera.net >http://four.pairlist.net/mailman/listinfo/gathering </BLOCKQUOTE></div><br

> clear=all><hr>The next generation of Hotmail is here - <a

> href="http://g.msn.com/8HMAENUK/2752??PS=47575" target="_top">Windows Live

> Hotmail</a> </html>

>

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